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Rare Disease Specialist

Zevra Therapeutics, Inc., New York, New York, us, 10261

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About Zevra Therapeutics, Inc. We are a rare disease therapeutics company leading with science to make life-changing therapeutics available to patients with significant unmet needs. We involve key thought leaders, physicians, patients, care partners, and advocacy groups in all of our clinical and regulatory development strategies.

With a keen understanding that drug development often requires creative solutions, we have the insight and expertise to forge new pathways to success that others have missed. By following the data without bias, our transparent narratives and common-sense perspective have successfully overcome complex development challenges to make much-needed therapies available to patients.

Nimble and dauntless, we push boundaries beyond what is thought to be possible and advance new therapies that have the potential to bring meaningful improvement to patients’ lives.

About the role The Rare Disease Specialist will be reporting to the National Sales Director and will be principally responsible for leading efforts to identify healthcare professionals responsible for diagnosing and treating patients with Urea Cycle Disorders (UCDs) and Niemann‑pick disease type C (NPC), driving patient finding strategy, disease awareness, overall market development, and brand awareness within their ascribed territory. The RDS will be responsible for achieving territory targets and other business objectives through account and customer strategies, while also partnering and collaborating with internal and external stakeholders to effectively manage all aspects of their business.

What you’ll do

Pre‑launch: Assist in functions related to Training and Field Sales as requested by the National Sales Director and the Head of Commercial Effectiveness.

Develop and execute a territory strategy and account‑specific plan. Lead the identification of healthcare professionals responsible for treating patients with NPC, patient‑finding strategy, market development in NPC, and brand awareness by building and executing against a territory strategy and account‑specific plans. Continuously assess sales opportunities within markets and accounts to maintain and grow business.

Drive product efficacy, safety, dosing, and access/HUB service messaging, to support new patient starts.

Achieve sales goals and maximize sales results.

Effectively prioritize and manage time, activities, and resources (people and financial) to optimize access to and development of accounts with the most sales potential.

Build and maintain relationships with physicians by maximizing their time through pre‑call planning, leveraging insights to tailor a call plan, and conducting post‑call analysis to continually refine and enhance the approach.

Proactively build effective working relationships with internal and external stakeholders; drive agreement/decisions from multiple stakeholders; read people’s emotions and flex communication style; adjust their approach based on different stakeholder needs, concerns, or audience members to drive alignment and meet work goals.

Effectively communicate and closely collaborate with stakeholders across commercial, compliance, legal, market access, and HUB patient services.

Build individual account plans for key accounts and physicians including approaches to customers, achieving sales goals, and maximizing sales results.

Develop territory strategy to retain customers.

Execute programs, in‑services, and in‑office (and/or virtual) presentations for their territory across multiple account types such as lysosomal storage disease centers.

Support development and implementation of training resources.

Routinely report territory‑level market dynamics and trends, including prescriber opinion and competitive activity to manager and escalates to home office as needed.

Demonstrate and uphold the highest standards of integrity and compliance.

Qualifications

Bachelor’s required: MBA/Science Degree preferred.

5+ years of rare disease experience. Deep experience in inborn errors of metabolism (IEMs) and/or neurology is important and strongly preferred.

Understanding and experience working with HUB patient services required.

A successful track record in pharmaceutical sales/management and/or field reimbursement products that required significant payer and reimbursement involvement.

Must be familiar with relevant legal and regulatory environment in biotech/pharmaceutical industry and have a demonstrated commitment to ethics, integrity, and compliant execution.

Product launch experience is a plus, including a working knowledge of government and commercial payers.

Experience in driving, leading, and delivering upon territory‑level cross‑functional business planning and influencing without authority.

Thorough understanding of site care identification, development, and education.

Understanding of patient services and specialty channel distribution is preferred.

Hospital/institution knowledge and expertise with pharmacy formulary processes.

Driving is an essential duty of the job; candidates must have a valid driver’s license to be considered.

Must live within 50 miles of the assigned territory.

Must be comfortable spending 60% of time traveling.

Equal Employment Opportunity Statement Zevra is an equal‑opportunity employer that is committed to diversity and inclusion in the workplace. We prohibit discrimination and harassment of any kind based on race, color, sex, religion, sexual orientation, national origin, disability, genetic information, pregnancy, or any other protected characteristic as outlined by federal, state, or local laws.

Notice to External Recruiters Zevra does not accept unsolicited resumes from agencies or search firms. Recruiters are requested not to contact employees or hiring managers. All candidate submissions must be coordinated through our Human Resources team and require a prior written agreement. Any resumes sent without such an agreement will not create any implied obligation.

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