Role: Executive Director, State Government Affairs at Stoke Therapeutics, leading state-level policy strategies to support access to RNA medicines for severe genetic diseases like Dravet syndrome.
Responsibilities
- develop and execute comprehensive state advocacy plans;
- monitor and influence legislation, regulation, Medicaid, and insurance policies affecting rare diseases;
- shape Medicaid and pediatric rare disease policies;
- build relationships with policymakers, patient groups, and stakeholders;
- manage lobbying campaigns, external consultants, and compliance;
- coordinate federal and state engagement.
Requirements
- bachelor's degree (advanced preferred);
- 12+ years in government affairs, public policy, or healthcare policy, with significant state experience;
- knowledge of Medicaid, managed care, insurance, and rare disease access;
- proven success in multistate legislative and regulatory strategies;
- established relationships with policymakers and advocacy groups;
- excellent communication, collaboration, and strategic skills;
- willingness to travel up to 40%.
High-Value
rare disease, pediatric neurology, genetic testing, Medicaid, policy advocacy, biotech/pharma experience.
Work setup
hybrid role based in Bedford, MA, relocating to Waltham, MA, with 30-40% travel.
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