Associate Director, Patient Advocacy and Operations
Dyne Tx, Waltham, MA, United States
Our commitment to people with neuromuscular diseases is our greatest strength.
Associate Director, Patient Advocacy and Operations Dyne Therapeutics is focused on delivering functional improvement for people living with genetically driven neuromuscular diseases. We are developing therapeutics that target muscle and the central nervous system (CNS) to address the root cause of disease. The company is advancing clinical programs for Duchenne muscular dystrophy (DMD) and myotonic dystrophy type 1 (DM1) as well as preclinical programs for facioscapulohumeral muscular dystrophy (FSHD) and Pompe disease. At Dyne, we are on a mission to deliver functional improvement for individuals, families and communities. Learn more at https://www.dyne-tx.com/ and follow us on X, LinkedIn, and Facebook.
Role Summary:
The Associate Director, Patient Advocacy & Operations works as part of the Corporate & Patient Affairs (C&PA) team with two key areas of focus: 1) cultivating and supporting strategic partnerships with patient advocacy organizations and 2) day‑to‑day management of key Patient Advocacy and Corporate Affairs operations. Reporting to the VP, Patient Advocacy, this role is highly integrated with internal cross‑functional teams and partners with external organizations. This role is based in Waltham, MA and does not offer a remote option.
Primary Responsibilities:
Partner closely with advocacy leaders and the broader patient community to advance key initiatives, including:
Executing the patient advocacy strategy in alignment with corporate objectives
Fostering strong, strategic relationships with patient leaders, caregivers, and advocacy organizations to inform company programs and priorities
Leading the planning and management of Patient Community Advisory Panels/Boards
Conducting one‑on‑one engagements with patient advocacy leaders to identify needs, insights, and opportunities for collaboration
Supporting clinical trial awareness and recruitment efforts through patient engagement and community‑focused initiatives
Collaborating with Medical Affairs, Marketing, Market Access/Patient Services, and Corporate Affairs to integrate the patient voice into R&D, clinical trial design, and commercialization efforts
Representing Dyne at patient advocacy events, conferences, and advisory boards
Collecting, synthesizing, and sharing patient community insights across functional teams
Identifying and coordinating community participants for Dyne‑led events (internal and external)
Plan and execute conference and patient advocacy organization (PAO) engagement activities:
Support Dyne’s presence at patient advocacy and select scientific/medical conferences, including event planning, session development, patient‑facing materials, symposia, presentations, and on‑site event execution
Staff events; willingness to travel approximately 20%
Serve as the operational lead for the Patient Advocacy Grants, Sponsorships & Donations committee, including budget oversight and end‑to‑end management of the submission process, coordinating with requestors, ensuring proper documentation, and overseeing contracting and payment workflows
Support the planning and execution of enterprise‑wide events (e.g., advocacy walks) that bring patient community voices into the organization and serve as a Patient Advocacy representative on cross‑functional teams
Manage and own patient engagement–related contracting, ensuring compliance and timely execution
Lead operational processes for advancing patient advocacy materials through Medical Legal Review (MLR), ensuring accuracy, alignment, and compliance
Education and Skills Requirements:
Bachelor’s degree in a relevant field required (social work, genetic counseling, nursing, public health preferred)
6+ years of experience in patient advocacy in the biotech/pharmaceutical industry, preferably within a clinical stage biotechnology company
Proven experience developing and sustaining partnerships with patient advocacy organizations and community leaders
Deep understanding of rare diseases and the unique needs of rare disease communities
Strong understanding of Patient‑Focused Drug Development (PFDD)
Exceptional communication, diplomacy, and cross‑functional collaboration skills
Experience managing budgets, teams, and compliance‑sensitive partnerships within a regulated environment
Proven experience partnering with clinical teams on trial awareness and recruitment efforts
Broad knowledge of the biopharma landscape and a solid working understanding of the drug development process
Strong interpersonal skills with the ability to influence without authority and work effectively across diverse functions and personalities
Compassionate, patient‑centered mindset, and a high degree of personal integrity
Ability to manage multiple simultaneous projects, navigate ambiguity, and thrive in a fast‑paced, dynamic environment
Experience with patient advocacy sponsorship contracting processes
Proven operations experience and excellent project, vendor, and budget management capabilities with a demonstrated ability to deliver results
Strong organizational skills and attention to detail
Bilingual fluency in Spanish is a plus
Overnight travel will be required; up to 20%
MA Pay Range: $155,000 — $200,000 USD. The pay range reflects the base pay range Dyne reasonably expects to pay for this role at the time of posting. Individual compensation depends on factors such as education, experience, job‑related knowledge, and demonstrated skills.
The statements contained herein reflect general details as necessary to describe the principles functions for this job, the level of knowledge and skill typically required, and the scope of responsibility, but should not be considered an all‑inclusive listing of work requirements. Individuals may perform other duties as assigned, including work in other functional areas to cover absences or relief, to equalize peak work periods or otherwise balance workload.
Dyne Therapeutics is an equal opportunity employer and will not discriminate against any employee or applicant on the basis of age, color, disability, gender, national origin, race, religion, sexual orientation, veteran status, or any classification protected by federal, state, or local law.
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Associate Director, Patient Advocacy and Operations Dyne Therapeutics is focused on delivering functional improvement for people living with genetically driven neuromuscular diseases. We are developing therapeutics that target muscle and the central nervous system (CNS) to address the root cause of disease. The company is advancing clinical programs for Duchenne muscular dystrophy (DMD) and myotonic dystrophy type 1 (DM1) as well as preclinical programs for facioscapulohumeral muscular dystrophy (FSHD) and Pompe disease. At Dyne, we are on a mission to deliver functional improvement for individuals, families and communities. Learn more at https://www.dyne-tx.com/ and follow us on X, LinkedIn, and Facebook.
Role Summary:
The Associate Director, Patient Advocacy & Operations works as part of the Corporate & Patient Affairs (C&PA) team with two key areas of focus: 1) cultivating and supporting strategic partnerships with patient advocacy organizations and 2) day‑to‑day management of key Patient Advocacy and Corporate Affairs operations. Reporting to the VP, Patient Advocacy, this role is highly integrated with internal cross‑functional teams and partners with external organizations. This role is based in Waltham, MA and does not offer a remote option.
Primary Responsibilities:
Partner closely with advocacy leaders and the broader patient community to advance key initiatives, including:
Executing the patient advocacy strategy in alignment with corporate objectives
Fostering strong, strategic relationships with patient leaders, caregivers, and advocacy organizations to inform company programs and priorities
Leading the planning and management of Patient Community Advisory Panels/Boards
Conducting one‑on‑one engagements with patient advocacy leaders to identify needs, insights, and opportunities for collaboration
Supporting clinical trial awareness and recruitment efforts through patient engagement and community‑focused initiatives
Collaborating with Medical Affairs, Marketing, Market Access/Patient Services, and Corporate Affairs to integrate the patient voice into R&D, clinical trial design, and commercialization efforts
Representing Dyne at patient advocacy events, conferences, and advisory boards
Collecting, synthesizing, and sharing patient community insights across functional teams
Identifying and coordinating community participants for Dyne‑led events (internal and external)
Plan and execute conference and patient advocacy organization (PAO) engagement activities:
Support Dyne’s presence at patient advocacy and select scientific/medical conferences, including event planning, session development, patient‑facing materials, symposia, presentations, and on‑site event execution
Staff events; willingness to travel approximately 20%
Serve as the operational lead for the Patient Advocacy Grants, Sponsorships & Donations committee, including budget oversight and end‑to‑end management of the submission process, coordinating with requestors, ensuring proper documentation, and overseeing contracting and payment workflows
Support the planning and execution of enterprise‑wide events (e.g., advocacy walks) that bring patient community voices into the organization and serve as a Patient Advocacy representative on cross‑functional teams
Manage and own patient engagement–related contracting, ensuring compliance and timely execution
Lead operational processes for advancing patient advocacy materials through Medical Legal Review (MLR), ensuring accuracy, alignment, and compliance
Education and Skills Requirements:
Bachelor’s degree in a relevant field required (social work, genetic counseling, nursing, public health preferred)
6+ years of experience in patient advocacy in the biotech/pharmaceutical industry, preferably within a clinical stage biotechnology company
Proven experience developing and sustaining partnerships with patient advocacy organizations and community leaders
Deep understanding of rare diseases and the unique needs of rare disease communities
Strong understanding of Patient‑Focused Drug Development (PFDD)
Exceptional communication, diplomacy, and cross‑functional collaboration skills
Experience managing budgets, teams, and compliance‑sensitive partnerships within a regulated environment
Proven experience partnering with clinical teams on trial awareness and recruitment efforts
Broad knowledge of the biopharma landscape and a solid working understanding of the drug development process
Strong interpersonal skills with the ability to influence without authority and work effectively across diverse functions and personalities
Compassionate, patient‑centered mindset, and a high degree of personal integrity
Ability to manage multiple simultaneous projects, navigate ambiguity, and thrive in a fast‑paced, dynamic environment
Experience with patient advocacy sponsorship contracting processes
Proven operations experience and excellent project, vendor, and budget management capabilities with a demonstrated ability to deliver results
Strong organizational skills and attention to detail
Bilingual fluency in Spanish is a plus
Overnight travel will be required; up to 20%
MA Pay Range: $155,000 — $200,000 USD. The pay range reflects the base pay range Dyne reasonably expects to pay for this role at the time of posting. Individual compensation depends on factors such as education, experience, job‑related knowledge, and demonstrated skills.
The statements contained herein reflect general details as necessary to describe the principles functions for this job, the level of knowledge and skill typically required, and the scope of responsibility, but should not be considered an all‑inclusive listing of work requirements. Individuals may perform other duties as assigned, including work in other functional areas to cover absences or relief, to equalize peak work periods or otherwise balance workload.
Dyne Therapeutics is an equal opportunity employer and will not discriminate against any employee or applicant on the basis of age, color, disability, gender, national origin, race, religion, sexual orientation, veteran status, or any classification protected by federal, state, or local law.
Apply for this job
#J-18808-Ljbffr