Voice for Rare Diseases: Consumer Co-Design Lead

A medical research institute based in Spokane, United States, seeks a Consumer Officer to advocate for individuals living with rare diseases. The role involves coordinating a consumer advisory group and participating in co-design research initiatives. Ideal candidates will have lived experience with rare diseases and a strong ability to engage and lead consumer groups. This position is pivotal in bridging the gap between clinical researchers and the unique needs of consumers in healthcare programs. #J-18808-Ljbffr